{"id":7,"date":"2020-02-12T15:23:20","date_gmt":"2020-02-12T14:23:20","guid":{"rendered":"https:\/\/sclerodermie.ca\/?page_id=7"},"modified":"2026-01-12T11:14:51","modified_gmt":"2026-01-12T16:14:51","slug":"home","status":"publish","type":"page","link":"https:\/\/sclerodermie.ca\/en\/","title":{"rendered":"Home"},"content":{"rendered":"<p>&nbsp;<\/p>\n<hr \/>\n<h2><span style=\"font-size: 12pt;\"><em><span style=\"text-decoration: underline;\"><span style=\"color: #000000; text-decoration: underline;\">Looking for participants for a clinical trial<\/span><\/span><\/em><\/span><\/h2>\n<h2>Randomized phase II clinical trial of mycophenolate mofetil in mild interstitial lung disease associated with systemic scleroderma.<\/h2>\n<p>CHUM rheumatologist Dr. Sabrina Hoa\u2019s research team is looking for participants with scleroderma and mild interstitial lung disease for a clinical trial. This pilot study will evaluate the efficacy of mycophenolate mofetil (an immunosuppressive drug) initiated early in the mild phase of lung disease, compared with placebo.<\/p>\n<h2><a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2024\/10\/Etude-mycophenolate_anglais_sceau.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"color: #000000;\">Study participation criteria.<\/span><\/a><\/h2>\n<p>&nbsp;<\/p>\n<h2><span style=\"font-size: 14pt;\"><a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2026\/01\/VE_SQ_Formulaire_Fiche_Inscription2026_Ang_WEB.pdf\" target=\"_blank\" rel=\"noopener\">Registration and information form<\/a><br \/>\n<\/span><\/h2>\n<p><a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2026\/01\/VE_SQ_Formulaire_Fiche_Inscription2026_Ang_WEB.pdf\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone\" src=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2024\/03\/AdobeStock_294015501-scaled.jpeg\" alt=\"\" width=\"341\" height=\"164\" \/><\/a><\/p>\n<p>For new and current participants, please complete the registration and information update form by clicking <a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2026\/01\/VE_SQ_Formulaire_Fiche_Inscription2026_Ang_WEB.pdf\" target=\"_blank\" rel=\"noopener\">here<\/a>.\u00a0 Once completed, please send the form by email to info@sclerodermie.ca or by mail to:<\/p>\n<p>Scleroderma Quebec<br \/>\n110 De La Barre Street, Suite 210, Longueuil, QC J4K 1A3<\/p>\n<p>&nbsp;<\/p>\n<h2><span style=\"font-size: 14pt;\">Notice to healthcare professionals<\/span><\/h2>\n<p><span style=\"font-size: 12pt;\">A clinical trial in scleroderma is currently recruiting at the CHUM. (VITALISScE\u2122 Trial)<\/span><\/p>\n<p>Please read the details of this clinical trial (VITALISScE\u2122) being conducted in the province of Quebec by Dr Sabrina Hoa&#8217;s team at the CHUM.\u00a0 <em><a href=\"https:\/\/sclerodermie.ca\/en\/research\/patient-participation-in-research\/\" target=\"_blank\" rel=\"noopener\">Read more<\/a><\/em><\/p>\n<p>&nbsp;<\/p>\n<h2><span style=\"font-size: 12pt;\">Scleroderma Quebec: Your Online Resource for Understanding and Managing Scleroderma<\/span><\/h2>\n<p>Discover Scleroderma Quebec&#8217;s online platform, designed to help people living with scleroderma better understand their condition and find relevant information on symptoms, treatments, and research advancements, primarily in Quebec and Canada. Our site offers videos, informational sheets, and patient forums open to everyone&#8230;<a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2023\/03\/VF_SQ_WEB_Feuillet_SitwWEB_Ang.pdf\" target=\"_blank\" rel=\"noopener\"><em>Read more<\/em><\/a><\/p>\n<h2>\u00a0<\/h2>\n<h2><a href=\"https:\/\/sclerodermie.ca\/en\/information-2\/articles-and-publications\/\" target=\"_blank\" rel=\"noopener\">Discover our educational sheets on scleroderma<\/a><\/h2>\n<p>At Scleroderma Quebec, our mission is to support you in your understanding of scleroderma. In collaboration with health specialists, we have developed a series of educational sheets to enlighten you about this complex condition. These resources cover, among other things:<\/p>\n<ul>\n<li>The basic principles of scleroderma, its manifestations, and treatment options.<\/li>\n<li>A detailed analysis of the symptoms for a better understanding of their impacts.<\/li>\n<li>The importance of emotional support and the value of support networks for living with resilience and hope.<\/li>\n<\/ul>\n<p>These sheets are a complement to the advice of your health specialist, enriching your dialogue with professionals and helping you take an active role in your care journey.<\/p>\n<p>We invite you to explore our educational sheets, designed to simplify access to information and equip you with the necessary tools for a comprehensive approach to managing scleroderma. Join our community to benefit from ongoing support and progress together, enriched by a network of mutual aid and knowledge exchange\u2026 <a href=\"https:\/\/sclerodermie.ca\/en\/information-2\/articles-and-publications\/\" target=\"_blank\" rel=\"noopener\"><em>Read more<\/em><\/a><\/p>\n<h2>\u00a0<\/h2>\n<h2><a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2024\/02\/Fiche_Groupe_Soutien_Anglais_WEB.pdf\" target=\"_blank\" rel=\"noopener\">Scleroderma Quebec Support Groups<\/a><\/h2>\n<p>Explore the scleroderma support groups offered by Scleroderma Qu\u00e9bec, led by trained volunteers who often are sufferers themselves. These spaces foster mutual support and provide strategies for managing life with the disease, welcoming newly diagnosed individuals, caregivers, or long-standing patients.<\/p>\n<p>Commitment and Safety: Sessions focused on validated information about symptoms and treatments aim to strengthen your support network and enhance daily management of scleroderma. They assist in confidently navigating the disease&#8217;s complexities.<\/p>\n<p>Important Notice for Participants: While providing emotional support and facilitating the exchange of experiences, our groups do not substitute for professional medical advice. Promoting treatments not approved by scleroderma specialists is prohibited, underscoring our commitment to practices validated by recognized experts.<\/p>\n<p>For more information&#8230;<a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2024\/02\/Fiche_Groupe_Soutien_Anglais_WEB.pdf\" target=\"_blank\" rel=\"noopener\"><em>Read more<\/em><\/a><\/p>\n<p>&nbsp;<\/p>\n<h2><span style=\"font-size: 12pt;\">Autoantibodies in scleroderma<\/span><\/h2>\n<p>Scleroderma is a complex disease that is the subject of extensive research to understand the pathogenic mechanisms and identify new therapeutic targets. This article focuses on the dysfunction of the immune system, specifically the particular antibodies found in the blood of people with scleroderma&#8230;<a href=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2023\/05\/VF_Fiche_Autoantibodies_in_scleroderma_WEB-1.pdf\" target=\"_blank\" rel=\"noopener\"><span style=\"color: #007da3;\"><em>Read more<\/em><\/span><\/a><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"font-size: 14pt;\"><strong><span style=\"font-size: 12pt;\">Every donation counts<br \/>\n<\/span><\/strong><\/span><\/p>\n<p>With your support, we can fight scleroderma!<\/p>\n<p><a href=\"https:\/\/www.imakeanonlinedonation.org\/sclerodermiequebec\/index.php?s=1&amp;l=2\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-17020 size-full\" src=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2020\/06\/ANG_SCLQ02_moisSclerodermie_siteWeb_bandeau-colonneCentre-dons_575x214.jpg\" alt=\"\" width=\"575\" height=\"214\" srcset=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2020\/06\/ANG_SCLQ02_moisSclerodermie_siteWeb_bandeau-colonneCentre-dons_575x214.jpg 575w, https:\/\/sclerodermie.ca\/wp-content\/uploads\/2020\/06\/ANG_SCLQ02_moisSclerodermie_siteWeb_bandeau-colonneCentre-dons_575x214-300x112.jpg 300w\" sizes=\"auto, (max-width: 575px) 100vw, 575px\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<hr \/>\n<p>&nbsp;<\/p>\n<p><span style=\"font-size: 14pt;\"><strong><span style=\"font-size: 12pt;\">Testimonies<\/span><\/strong><\/span><\/p>\n<p>Discover the stories of people with the disease.<\/p>\n<p><a href=\"https:\/\/sclerodermie.ca\/en\/support-and-assistance\/testimonials-faces-of-hope\/\" rel=\"attachment wp-att-17057\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-17057 alignnone\" src=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2020\/06\/Test_ANG_SCLQ02_moisSclerodermie_siteWeb_bandeau-colonneCentre-temoignages_575x302.jpg\" alt=\"\" width=\"575\" height=\"302\" srcset=\"https:\/\/sclerodermie.ca\/wp-content\/uploads\/2020\/06\/Test_ANG_SCLQ02_moisSclerodermie_siteWeb_bandeau-colonneCentre-temoignages_575x302.jpg 575w, https:\/\/sclerodermie.ca\/wp-content\/uploads\/2020\/06\/Test_ANG_SCLQ02_moisSclerodermie_siteWeb_bandeau-colonneCentre-temoignages_575x302-300x158.jpg 300w\" sizes=\"auto, (max-width: 575px) 100vw, 575px\" \/><\/a><\/p>\n<p><strong>Last updated : November 22, 2025<\/strong><\/p>\n<hr \/>\n<p style=\"text-align: right;\">\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp; Looking for participants for a clinical trial Randomized phase II clinical trial of mycophenolate mofetil in mild interstitial lung disease associated with systemic scleroderma. CHUM rheumatologist Dr. Sabrina Hoa\u2019s research team is looking for participants with scleroderma and mild interstitial lung disease for a clinical trial. This pilot study will evaluate the efficacy of [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-7","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/pages\/7","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/comments?post=7"}],"version-history":[{"count":372,"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/pages\/7\/revisions"}],"predecessor-version":[{"id":29790,"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/pages\/7\/revisions\/29790"}],"wp:attachment":[{"href":"https:\/\/sclerodermie.ca\/en\/wp-json\/wp\/v2\/media?parent=7"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}