Support in your community
Scleroderma Quebec strongly believes in the merits of self-help groups. Support group meetings create an environment conducive to discussions by providing a meeting place where people affected by the disease can share personal experiences and learn how to improve their well-being.
Providing support to scleroderma patients and their families is the objective that we have set for ourselves in establishing various self-help groups.
Kind-hearted people
Support groups, made up of dedicated community-based volunteer resource persons, allow scleroderma patients to break out of their isolation by answering their questions and providing easy access to accurate and understandable information about their disease and well-being, thus improving their quality of life.
Would you like to learn more about scleroderma? Do you feel isolated? Join your local support group: as well as offering a warm welcome, they have relevant information and resources related to scleroderma. Do not hesitate to contact us.
To join a virtual support group on Zoom, please contact Violet Konrad at 819-919-0234.
| Abitibi-Temiscamingue | ||
| Louise Bourgault | loubourgault@hotmail.com | 819-825-7630 |
| Monique Arsenault | monicarseno@icloud.com | 819-856-5220 |
| Bas St-Laurent/Gaspesie | ||
| Louise Vidricaire | elvee@sympatico.ca | 418 240-2620 |
|
Capitale Nationale/ Chaudière-Appalaches and Saguenay/Charlevoix (Group of three regions) |
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| Louise Vidricaire | elvee@sympatico.ca | 418 240-2620 |
| North Shore, Laurentians, Lanaudière and Mauricie (virtual meetings) | ||
| Geneviève Guillot | gguillot9@gmail.com | 514-559-7137 |
| Eastern Townships | ||
| Violet Konrad | vkonrad08@gmail.com | 819-919-0234 |
| Edouard-Charles Lebeau | eclebeau12@gmail.com | 819-919-0234 |
| Mauricie (In person) | ||
| Marie-Claude Forêt | marie.inf.mcf@gmail.com | 819-244-8199 |
| Montérégie | ||
| Lise St-André | sclerodermiemonteregie@gmail.com | 1-844-990-6789 |
| Montreal and Laval | ||
| Lise St-André (Montréal) | sclerodermiemontreal@gmail.com | 1-844-990-6789 |
| Outaouais | ||
| Micheline Parent | micheline.parent@videotron.ca | 819-281-0244 |
| Evening Group | ||
| Geneviève Guillot | gguillot9@gmail.com | 514-559-7137 |
| Men’s Support Group | ||
| We are looking for volunteers this group. Interested in getting involved? Contact Violet Konrad au 819-919-0234 | ||
| Groups for young people ages 14-35 | ||
| Lisa Dewar | tite_lisa@hotmail.com | 819-360-6689 |
| Support Group – Localized Scleroderma Group | ||
| Contact Violet Konrad au 819-919-0234 | ||
| Groups in English | ||
| Violet Konrad | vkonrad08@gmail.com | 819-919-0234 |
| Patsy Van Louie | pvlouie30@gmail.com | 514-865-5888 |
These resource people regularly lead virtual meetings. Their contact information is updated on our website, at www.sclerodermie.ca/en under Support groups. Depending on your availability, we encourage you to attend a meeting offered in another region if the times available are more convenient for you..
Scleroderma Quebec, is looking for volunteers with scleroderma or caregivers who would like to lead a Scleroderma Quebec support group. We need volunteers for certain regions, as well as for the formation of a group for young adults with scleroderma.
As a first step, we invite you to contact us to attend meetings on Zoom to see how things are done. In this regard, you will find the testimony of a person who participates in our virtual meetings by clicking on this link. At the appropriate time, training will be given to future candidates for group facilitation.
Kind regards,
Violet Konrad
Support committee member.
819 919-0234
vkonrad08@gmail.com