What is scleroderma?

Scleroderma, or systemic sclerosis, is a relatively misunderstood chronic disease affecting about one in 5,000 people. In Quebec, it is estimated that several thousands of people suffer from scleroderma. Disease onset usually occurs in the fourth decade of life and is five time more prevalent in women than men. Scleroderma is one of the so-called “autoimmune” diseases in which the body’s antibodies attack its own cells. Scleroderma is not a contagious disease… Read more

 

How scleroderma can affect the human body?

Poster symptoms and manifestations of scleroderma… Read more

 

Novelties

Scleromyositis: a specific muscle manifestation of scleroderma *NEW

The main symptom of myositis is usually muscle weakness, mainly in the shoulders and hips. People with myositis may have difficulty lifting their arms above their shoulders, lifting heavy objects, climbing stairs or getting up from a seat… Read more

 

Scleroderma in Children *NEW

The first is called «localized scleroderma». This is the most common in children. It affects the skin in one area of the body only. The other type is called «systemic scleroderma». This can affect many areas of the skin, as well as the organs of the body. It is rare in children… Read more

 

The scleroderma patient-centered intervention network and the SPIN-HAND program *NEW

The SPIN-HAND program provides you with gentle hand exercises explicitly designed for people with scleroderma, with sections to help you develop a personalized program, set goals, and track your progress. Instructional videos demonstrate how to perform each exercise properly with pictures to illustrate common mistakes… Read more

 

Vaccination against COVID-19 (as August 31, 2022) *NEW

Fall vaccination… Read more

 


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Testimonies

Discover the stories of people with the disease.

Last updated : November 25, 2022


 

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