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Your Medical Care Management

When it comes to navigating the healthcare system and collaborating with various healthcare professionals, preparing for appointments can often prove to be a challenging task. Here are some tips aimed at assisting you in preparing for your appointment with the medical team. Topics covered include medications, blood pressure, blood tests, symptoms of scleroderma, vaccines, investigations, consultations, and hospitalization.


How to prepare for an Appointment with your Health Care Team

Have your medication list up to date and note if there are any side effects to the medications. If you are not taking some of the medications as prescribed, it is important to report this to your doctor so that a fair assessment can be made of the effectiveness of the treatments.

We also invite you to download the Medical Care Management Workbook (2019 revision) to help you efficiently organize, track, and catalog your medical information.


Health Management Binder 2019

Scleroderma patients experience a broad spectrum of symptom manifestations. These medical issues cause there to be a need to visit a number of healthcare professionals. Please use this page to record visit to specialists sush as: Rheumatologists, Pneumologists, Cardiologists, Gastroenterologists, Dermatologists, Nephrologists, Vascular Surgeons, etc.

However, it’s important to note that this Medical Care Management Workbook is by no means intended to replace professional medical advice. The workbook is a resource meant to be used in conjunction with your healthcare provider(s).


We hope that this workbook proves to be a simple yet effective tool in managing your healthcare.


Additionally, in order to raise awareness about the primary complications of scleroderma, we encourage you to familiarize yourself with warning signs that you and your loved ones should regularly pay attention to. Once again, we refer you to the list of sheets describing the different symptoms and manifestations of scleroderma.


I schedule a sufficiently long appointment to discuss my concerns with the doctor and bring all my prescribed and non-prescribed medications.